Desafios Diários de Cuidadores de Bebês em Tratamento para Displasia do Desenvolvimento do Quadril (DDQ)

Paula Ide Coelho de Souza; Natália Aurora dos Santos; Eduardo Keller Rorato; Thabata Alcantara Ferreira Ganga; Maria Elizete Kunkel

doi:10.36489/saudecoletiva.2025v16i103p18206-18223

Autores/as

Paula Ide Coelho de Souza Engenheira Biomédica - Universidade Federal de São Paulo UNIFESP.
Natália Aurora dos Santos Mestre em Engenharia Biomédica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0000-0001-7356-5246
Eduardo Keller Rorato Mestre em Inovação Tecnológica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0009-0009-3755-5820
Thabata Alcantara Ferreira Ganga Mestre em Inovação Tecnológica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0000-0001-6801-8985
Maria Elizete Kunkel Doutora em Biomecânica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0000-0003-1711-9289

DOI:

https://doi.org/10.36489/saudecoletiva.2025v16i103p18206-18223

Palabras clave:

Displasia del Desarrollo de la Cadera, Ortopedia, Red Social

Resumen

Objetivo: Investigar los principales desafíos que enfrentan los cuidadores de bebés en tratamiento por Displasia del Desarrollo de la Cadera (DDC) e identificar las estrategias adaptativas adoptadas durante el cuidado diario. Método: Estudio de métodos mixtos que combinó el análisis temático de 50 publicaciones en tres grupos brasileños de redes sociales sobre DDC y una encuesta estructurada aplicada a los mismos cuidadores, con preguntas cuantitativas y abiertas. Resultados: Los principales desafíos informados fueron higiene (18%), cambio de pañales (16%) y retrasos en el desarrollo (32%). El 54,6% utilizó el arnés de Pavlik (58% éxito) y el 36,4% el yeso pelvipodálico (37,5% éxito). Las estrategias incluyeron coberturas protectoras y técnicas de manejo modificadas. Conclusión: La falta de orientación específica y materiales educativos adecuados aumenta el estrés de los cuidadores. Los hallazgos destacan la necesidad de programas educativos y dispositivos ortésicos más ergonómicos y accesibles.

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