Desafios Diários de Cuidadores de Bebês em Tratamento para Displasia do Desenvolvimento do Quadril (DDQ)

Paula Ide Coelho de Souza; Natália Aurora dos Santos; Eduardo Keller Rorato; Thabata Alcantara Ferreira Ganga; Maria Elizete Kunkel

doi:10.36489/saudecoletiva.2025v16i103p18206-18223

Authors

Paula Ide Coelho de Souza Engenheira Biomédica - Universidade Federal de São Paulo UNIFESP.
Natália Aurora dos Santos Mestre em Engenharia Biomédica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0000-0001-7356-5246
Eduardo Keller Rorato Mestre em Inovação Tecnológica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0009-0009-3755-5820
Thabata Alcantara Ferreira Ganga Mestre em Inovação Tecnológica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0000-0001-6801-8985
Maria Elizete Kunkel Doutora em Biomecânica - Universidade Federal de São Paulo UNIFESP. https://orcid.org/0000-0003-1711-9289

DOI:

https://doi.org/10.36489/saudecoletiva.2025v16i103p18206-18223

Keywords:

Developmental Dysplasia of the Hip, Orthopedics, Social Networks

Abstract

Objective: To investigate the main challenges faced by caregivers of infants undergoing treatment for Developmental Dysplasia of the Hip (DDH) and identify adaptive strategies adopted during daily care. Methods: A mixed-methods study combining thematic analysis of 50 posts from three Brazilian social media groups on DDH and a structured survey administered to the same caregivers, including quantitative questions and open-ended responses. Results: The main challenges reported involved hygiene (18%), diaper changing (16%), and developmental delays (32%). Among the caregivers interviewed, 54.6% used the Pavlik harness (58% success) and 36.4% used the hip spica cast (37.5% success). Adaptive strategies included protective coverings and modified handling techniques. Conclusion: The lack of specific guidance and educational materials increases caregiver stress. Findings highlight the need for targeted educational programs and more ergonomic and accessible orthotic devices.

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