Desafios Diários de Cuidadores de Bebês em Tratamento para Displasia do Desenvolvimento do Quadril (DDQ)
DOI:
https://doi.org/10.36489/saudecoletiva.2025v16i103p18206-18223Palavras-chave:
Displasia do Desenvolvimento do Quadril, Ortopedia, Redes sociaisResumo
Objetivo: Investigar os principais desafios enfrentados por cuidadores de bebês em tratamento para Displasia do Desenvolvimento do Quadril e identificar estratégias adaptativas adotadas durante o processo de cuidado. Método: Estudo de métodos mistos com análise temática de 50 postagens em três grupos brasileiros de redes sociais sobre DDQ e aplicação de questionário estruturado aos mesmos cuidadores, combinando questões quantitativas e respostas abertas. Resultado: As principais dificuldades relatadas envolveram higiene (18%), troca de fraldas (16%) e atrasos no desenvolvimento (32%). Dos cuidadores entrevistados, 54,6% utilizaram o suspensório de Pavlik (58% sucesso) e 36,4% o gesso pelvipodálico (37,5% sucesso). Estratégias incluíram coberturas protetoras e técnicas modificadas de manuseio. Conclusão: A falta de orientações específicas e materiais educativos adequados intensifica o estresse dos cuidadores. Os resultados evidenciam a necessidade de programas educativos e dispositivos ortóticos mais ergonômicos e acessíveis.
Referências
Noordin S, Umer M, Hafeez K, Nawaz H. Developmental dysplasia of the hip. Orthop Rev. 2010;2(2):e19. doi:10.4081/or.2010.e19 DOI: https://doi.org/10.4081/or.2010.e19
Motta GGB, Nogueira-Barbosa MH, Sartor AO, Guimarães FA, Pires RE. Prevalence of developmental dysplasia of the hip in a maternity hospital in São Paulo, Brazil. Rev Bras Ortop. 2021;56(5):664-670. doi:10.1055/s-0041-1731706 DOI: https://doi.org/10.1055/s-0041-1736407
Schwend RM, Shaw BA, Segal LS. Evaluation and treatment of developmental hip dysplasia in the newborn and infant. Pediatr Clin North Am. 2014;61(6):1095-1107. doi:10.1016/j.pcl.2014.08.008 DOI: https://doi.org/10.1016/j.pcl.2014.08.008
Vaquero-Picado A, González-Morán G, Garay EG, Moraleda L. Developmental dysplasia of the hip: update of management. EFORT Open Rev. 2019;4(9):548-556. doi:10.1302/2058-5241.4.180080 DOI: https://doi.org/10.1302/2058-5241.4.180019
Nicholson A, Wilkinson M. Developmental dysplasia of the hip in infants and children. BMJ. 2023;383:e074507. doi:10.1136/bmj-2022-074507 DOI: https://doi.org/10.1136/bmj-2022-074507
Souza BGS, Vasconcelos BMC, Pujoni HP, Nogueira MC, Oliveira VM, Chaoubah A. Epidemiology and costs of surgical treatment of developmental dysplasia of the hip in the Brazilian Public Health System in a decade. Einstein (São Paulo). 2021;19:eGS5625. doi:10.31744/einstein_journal/2021GS5625 DOI: https://doi.org/10.31744/einstein_journal/2021GS5625
Bakarman M, Alshahrani M, Alzahrani A, Alqahtani S, Sindi A. Developmental dysplasia of the hip in neonates: risk factors, diagnosis, and early intervention. Cureus. 2023;15(9):e43207. doi:10.7759/cureus.43207 DOI: https://doi.org/10.7759/cureus.43207
Chlapoutakis K, Kolovos S, Pippidi E, Dimitriou R, Skoulikaris N, Raissaki M. Screening for developmental dysplasia of the hip in Greece: current practice and future perspectives. Explor Musculoskeletal Dis. 2024;2:264-269. doi:10.37349/emd.2024.00054 DOI: https://doi.org/10.37349/emd.2024.00054
Batley MG, Gornitzky AL, Sarkar S, Sankar WN. What are the psychosocial effects of Pavlik harness treatment? A prospective study on perceived impact on families and maternal-infant bonding. J Pediatr Orthop. 2024;44(2):e109-e114. doi:10.1097/BPO.0000000000002542 DOI: https://doi.org/10.1097/BPO.0000000000002542
Saeed A, Bradley CS, Verma Y, Kelley SP. Resolving residual acetabular dysplasia following successful brace treatment for developmental dysplasia of the hip in infants. Bone Joint J. 2024;106-B(7):744-750. doi:10.1302/0301-620X.106B7.BJJ-2023-1169.R1 DOI: https://doi.org/10.1302/0301-620X.106B7.BJJ-2023-1169.R1
Ömeroglu H. Treatment of developmental dysplasia of the hip with the Pavlik harness in children under six months of age: indications, results, and failures. J Child Orthop. 2018;12:234-245. DOI: https://doi.org/10.1302/1863-2548.12.180055
Pollet V, Pruijs H, Sakkers R, et al. Results of Pavlik harness treatment in children with dislocated hips between the age of six and twenty-four months. J Pediatr Orthop. 2010;30(7):589-594. DOI: https://doi.org/10.1097/BPO.0b013e3181df85ab
Judd J. Common childhood orthopaedic conditions, their care and management. In: Clarke S, Santy-Tomlinson J, editors. Orthopaedic and trauma nursing: an evidence-based approach to musculoskeletal care. 2nd ed. Chichester: Wiley; 2023. p.312-330.
Lourenço ASJ. Perceção de autoeficácia dos pais para cuidar da criança com imobilização gessada no domicílio após a alta [dissertação de mestrado]. Coimbra: Escola Superior de Enfermagem de Coimbra; 2017.
Erden S, Bulut H. The problems experienced by parents providing postoperative home care following their child's surgery for developmental dysplasia of the hip. Orthop Nurs. 2015;34:88-95. DOI: https://doi.org/10.1097/NOR.0000000000000178
Gibbard M, Zivkovic I, Jivraj B, Schaeffer E. A global survey of patient and caregiver experiences throughout care for developmental dysplasia of the hip. J Pediatr Orthop. 2021;41:e475-e480. doi:10.1097/BPO.0000000000001813 DOI: https://doi.org/10.1097/BPO.0000000000001813
Miller B. The parents' guide to hip dysplasia. 2nd ed. Atlanta: Turner Publishing; 2013.
Trice N. Cast life: a parent's guide to DDH: developmental dysplasia of the hip explained. 1st ed. Exeter: Nell James Publishers; 2015.
Bengtsson M. How to plan and perform a qualitative study using content analysis. Nurs Plus Open. 2016;2:8-14. doi:10.1016/j.npls.2016.01.001 DOI: https://doi.org/10.1016/j.npls.2016.01.001
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101. doi:10.1191/1478088706qp063oa DOI: https://doi.org/10.1191/1478088706qp063oa
Wright KB. Researching internet-based populations: advantages and disadvantages of online survey research, online questionnaire authoring software packages, and web survey services. J Comput Mediat Commun. 2005;10(3):Article 11. doi:10.1111/j.1083-6101.2005.tb00259.x DOI: https://doi.org/10.1111/j.1083-6101.2005.tb00259.x
Allen IE, Seaman CA. Likert scales and data analyses. Qual Prog. 2007;40(7):64-65.
